We are officially several weeks into school, several weeks into therapy, and past the major dental disaster of 2015. Declan sailed through the dental procedures way better than I could have hoped or imagined. We prepared ourselves mentally for the worst but we are so so SO grateful that he didn’t have major complications or hate us after waking up from anesthesia with 8 crowns and a mouth full of fillings. I still can’t believe my 3 year old needed SO much dental work, it gets my wheels spinning trying to figure out if this is purely genetic, or if having hyperemesis gravidarum while pregnant then his poor eating habits has just created a monster of horrendous baby teeth. No matter the cause, it is DONE, and while I am sad about him having “fake” teeth, he seems to be overall happier now that it’s all behind him.
We have had a few weeks now to adjust to therapy appointments and school (minus the week we took off for dental). If I’m being honest, the therapy is wearing us both out so much that I wonder if it’s going to be beneficial. It’s breaking his little spirit; he’s exhausted all the time. He still does ok out around other people but once he’s home the fatigue comes out and since he refuses to nap there isn’t much we can do but put music on and dance! It’s weird because we had 2 weeks where he was acting really typical, then all of a sudden this week, BAM, everything came back to the surface. I hope this evens out over the next few weeks, otherwise we will have to drop some of the therapy just because he can’t function at home being so tired! He currently does speech/feeding therapy 3x a week and has OT once a week (plus school for you know… socialization, ha!). They are all on Monday-Wednesday though so by the time we hit Wednesday afternoon he is DONE (and I am too). Thursday we all have a hard time getting out of bed! Two sessions are through the school district but the other two are really expensive so I want to make sure he can actually function if I’m paying for it! It’s interesting talking to other mommas on this walk and realizing how broken our system is. Many of us make too much for state assistance but our insurance does not cover SPD/autism because it falls under a “developmental delay” category. One day…. when I’m not so frazzled just keeping up with my kids… I hope to find a way to fix this. It just isn’t fair for all these families to be in financially bad positions paying for therapy while also paying high monthly insurance premiums! As if we didn’t have enough to stress about, throw in the mix finding money at the end of the month when you’re broke from therapy :/
We have another ARD meeting for Declan in a few weeks to move forward with psychological evaluations. This is a huge praise because it’s one less thing we have to pay for personally! I’m a little torn on wanting an official label on him, but I know if they think he fits on the spectrum then that opens up many services for him :) It has the possibility of having a better schedule for him if everything is offered through the district.
I finally have a few “mommy” hours this week and spent some time going through our Colorado photos. I should probably sleep, or workout, or go by Sephora to actually get some makeup for myself; but It’s brought me joy to go through these photos. If I had known what we were about to face we wouldn’t have gone on this trip… but I’m so glad that God gave us this time as a family to go, have fun, and have something to look back on. God knew we needed this little calm before the storm! And going through the pictures makes me smile and cry at the same time – I can now officially call myself a hot mess. And the best thing is I don’t even care, haha!