It’s so hard to describe how our world has changed in the last year! It’s been so long since I even used this blog, but in an effort to keep family and friends updated about Declan, I think this is the perfect reason to revive this blog.
When Declan was born I quit my job teaching so I could focus on him, knowing that I would need to go back to work when he was around 2 years old. From my experience with Adalyn I expected colic, expected reflux, and knew the first year with our children is just hard. With Declan the challenges just didn’t stop… sadly I would give anything to go back to waking every 2 hours to nurse him and changing diapers constantly because yes, that would be easier than our day to day now. But life changes and seasons change and Declan is teaching our little family all sorts of things. I now know even more acronyms than I knew as a teacher, I know which processed foods have vitamins hidden in them, and I am starting to get the hang of this special needs mom thing.
Declan looks completely “normal”, whatever that means anyways. And in lots of ways he is! And I feel confident that on the other end of this he will be a successful adult who just has some quirks (but who doesn’t). However, in the midst of this season, his dad and I (and his sister Adalyn) are all struggling very much to try to get him to eat, speak, and poop (yes, you read that correctly). I keep saying in my head “If he would just eat and poop like a normal kid then he would be so much happier!” – but the fact that he doesn’t means that Declan is atypical. Early this summer he started stimming. I didn’t realize it at the time, but now I know how to identify his stimming and know to get him to a more controllable situation. Aside from the food aversions and bathroom aversions, he has a very large speech delay making communication difficult and he’s very sensitive to touch and noise.
I’ll try to keep the blog updated with our journey. I’m comforted with the friends who have chosen to walk this road with us, and for my parents who have been there for us. I love that he teaches me so much, and I believe he teaches everyone around him lots!
Here’s a few recent photos of Declan :) I miss when he was able to make direct eye contact with the camera, but sheesh he is a little ham when he decides he’s ok with being in front of the camera :) :) Makes my photographer heart happy!
Our family would really appreciate some prayers if you have a moment to add us to your prayer journals! Some specific requests include
-direction on whether to seek out another developmental pediatrician whose wait list is not so long
-for Declan to start eating some healthy foods
-for Declan’s energy level to increase so he can attend all these therapies at a high functioning level
-for Adalyn to understand that while our life is different, it is good too
-for God to work some magic with our finances as we attempt to fit in over $1,000 monthly in therapy and a very very large dental bill
-and for peace in our little home in the midst of it being meltdown central at the moment
Thank you friends!!